Ceci's Courage Crew & Family Too

Yes those are big snowflakes falling from the sky 😁

Our girl finally ate something today!

She still doesn’t have much of an appetite but the wonderful nutrition staff convinced her to order lunch and she ate a chicken strip and had a few drinks of some apple juice.

It’s not much but it’s a start and we’ll take it 🙂

She had some special visitors earlier that made her morning. Captain America and Spider Man came to see how she was doing and chatted with her for a bit.

They even gave her some comic books to take home to Aiden and Nicholas. She thought it was great they showed up to cheer all the kiddos up. We have lots of little ones on the floor today, it was great seeing them smile.

The craziest thing for us is watching it snow here in Illinois in October! It’s been coming down all afternoon and just last week we were in the 90s sweating while we put our Halloween decorations up.

Although me and Ceci aren’t ready for the snow we sure do enjoy watching it come down. It looks so pretty and calm outside. It’s a nice change and some different scenery to look at.

Doctor Reid came up just a bit ago from Surgery to check on our girl and tried to access ceci’s urinary stoma. Unfortunately it didn’t go the way we hoped. When she tried to access it, ceci’s abdomen started bleeding immediately and she was unable to pass it. So she decided she wanted to try again with a much smaller tube.

It was painful for sis but doctor was finally able to pass it and get her pathway back open. She’s instructed us that she wants it left in for now to keep the pathway open and tomorrow we’ll reevaluate. She’ll get another heavy dose of antibiotics this afternoon and another later tonight again while running around the clock iv fluids.

We were hoping to be able to get our girl back home tomorrow but we’ll gladly stay another few days if it means we’ll finally rid her body of these infections.

Child life has been bringing her some activities to help keep her mind off everything and keep her busy. She’s done sand art, painted on little mini size canvases and now she’s coloring and watching Matty B videos on youtube.

Dad and the boys are suppose to be coming up to see us after he gets off work today. Ceci’s really looking forward to a visit from her boys, so we’re hoping the weather will ease up a bit for their drive.

We hope everyone’s doing wonderful today.

Enjoy the rest of your day and we’ll be back later with another update.

Lots of love and hugs,

Alexis (mom), Ceci Marie & family

~ Spina Bifida Fighters and survivor~