Okay yall this is our last update for the evening.
Well things changed quickly for sis.
The pain has been too much for her to tolerate so her procedure originally scheduled for monday, then rescheduled to tomorrow, ended up happening this evening- bedside.
The pediatric surgeon’s resident, removed the tube that was holding her track open and placed a much bigger size tubing.
The balloon ripped up her abdomen wall so much that they had to go from her normal size tubing 14 to an 18 inch.
It did not go in smoothly 😞 my poor girl.
They gave her a high dose of Fentanyl and an oral dose of Narco to help ease the pain. But when he went to insert the bigger tubing into the overly irritated and ripped up abdomen wall, it knocked the wind out of ceci so badly I had to grab her tightly and tell her to breath.
Even with the pain medicine it was too much for her to bare.
And we still do not know if she’s out of the clear with this darn wound.
She still has so much stomach acid pouring out of it that it’s continuing to burn her skin and they tried to flush fluids through her intestines with it and it just poured out of the site instead of going through her intestinal track.
We are working on getting her into a fresh gown now, getting her comfortable for the night and we’ll revisit everything with pediatric surgery tomorrow.
We are hoping for an uneventful night and loads of 😴 sleep for both of us.
We just want to take a second to tell everyone thank you for the kind messages and emails 💜
This has been a very trying week for ceci and our family.
Be back tomorrow.
Lots of love and hugs,
Alexis, ceci and our family
~Spina Bifida Fighters and Survivor~
Ceci's Courage Crew & Family Too 
Alexis, many of us in your Habitat family are praying for you and Ceci. I hope the night will bring healing for you both and that tomorrow will be a better day. Belinda Holbrook
LikeLiked by 1 person
💜 Dearest Belinda,
Thank you so much for always thinking about Ceci and sending up prayers for healing and relief.
Please tell our Habitat Family we say thank you so much ❤
LikeLike
Alexis, many of us in your Habitat family are praying for you and Ceci. I hope the night will bring healing and that tomorrow will be a better day.
LikeLiked by 1 person
Just prayed for a good sleep for both of you!!!
LikeLiked by 1 person
💜 thank you very much Betty.
We were able to get some much needed rest in between pain medicine and wound management.
We are keeping faith that to today will be better and they will be able to figure out a plan of action to get her better.
LikeLike
We can only imagine the trauma she is dealing with, and stress for you in bearing 5his with her. In sure you’re just beside yourself in wanting to help ease her pain. Praying for a night of sleep by whatever drugs work…for you both. God bless.
LikeLiked by 1 person
Prayers for relief sent your way.
LikeLiked by 1 person
I am so sorry Cece’s having to go thru so much. I pray that God will wrap his arms around Cece and you and the dr’s so that they will know what to do to help Cece. I know what it feels like to not be able to help your child because in 78 and 79 my 1st son was in LeBonhuer in Memphis for 99.9% of his 13 months of life. He had no immunity and back then there wasn’t much that could be done. So know that i’m praying for you, Cece and your family. I hope you both get some rest tonight.
LikeLiked by 1 person
Thank you dearest Sandee.
And thank you for sharing your own story with us. 💜
LikeLike