Just Breathe….

Hi guys, thanks for coming back by Ceci’s Blog to check on our girl and to become part of Ceci’s Courage Crew 🙂

The support you guys have been showing has been so amazing.

<3<3<3 Thank you <3<3<3 

I’m glad to say that Ceci is doing better this evening. 

Currently she is laying in bed with the head of her bed up to a 48 degree angle , watching Lizzie McGuire and she is tolerating the pain. This is a big step in the right direction. 

She has not been able to tolerate having the head of her bed up since last Tuesday. We are so glad that she is showing signs of improvement! We needed something good to talk about. 

Pediatric Surgery came to see Ceci about the pus coming out of her wound. They examined the area and also put pressure on Ceci’s abdomen 😦 to see if we would have further oozing indicating an infection in the cavity wall.

Thankfully we did not get further return from her site, so we are hopeful that it isn’t getting to a point that she would need further intervention. The doctors believe that the pus may just be a sign that Ceci’s insides are healing. I know that sounds crazy right?!?!

Everyone on Ceci’s care team is aware of the new symptom so we will all be keeping an eye on it in case. 

As long as it does not secrete more pus, she doesn’t complain about additional stomach pain and the fever doesn’t return we are looking okay.


The Norco continues to control her pain at tolerable levels and we were even able to get her rolled onto her sides to get fresh bedding on her bed, wash her hair with a bed board and help her with a bed bath. 

Again another big step 😀 

She did have moments during all this, but she was such a good patient and understood that we were doing it to help her feel better. 

After we finished up I was able to get the head of her bed up (as seen in the pic above), but we had a moment of , “OMG I am going to throw up mom!” 

I’m not sure what it was but I explained to her that it probably had to do with a mix of the pain medication, having her head elevated to this height for the first time in days and also moving her from side to side in the bed. 

She was feeling nauseous, dizzy and just wanted to close her eyes. After a few moments she was in a deep snoring sleep. Hehehe yep she was snoring. That tells you how wiped out our girl has been. She does not snore. Which is more than I can say for most of our family. 

Once she woke up we ordered her some lunch. She ordered a cheeseburger, fries, mandarin oranges and a chocolate ice cream cup. She ate her fries and most of her chocolate ice cream cup. Was not her usual eating habitats but much more than she’s eaten in a week. 

Pediatric surgery wanted to keep her on clear fluids for another few days, but Ceci has been NPO since Friday and I believe the last time she ate anything at home during all this, was Thursday morning. So you can imagine how grumbly her tummy has been. 

He decided to allow her to eat today and see how it goes. So far it doesn’t seem to be effecting the leaking from her side. It did not increase the spillage.

It continues to pour out at the rate that we are having to change her gauze, abdomen pads and put a new bath towel across her about every 2-3 hours.  I just took a look at her incision and it does not look so red this evening. Those prayers and good thoughts are helping her heal ❤ Keep them coming guys. 

Well I am getting ready to sign out so that me and Ceci can have an American Girl movie marathon. Child Life was kind enough to track down some movies for her to watch and they brought in a comfy, calming hand made blanket that someone made and donated for the kiddos here. 

It can make a heck of a different to have something soft and brightly colored laying next to you when your healing in a hospital bed. It helps cheer up the room and brings comfort when your confined to a bed. I wish I could tell the maker thank you in person. Ceci really loves it. I’ll have to post a picture later so you guys can see how pretty it is. 

Before I sign off I did want to post mailing information that many of you have asked for to send Ceci a card and some words of encouragement. Mail can be sent to our home address to ensure she gets it either when we return home or when family travels up to see sis. We will also include the hospital address 🙂


Our home address: 

Cecilia Marie 

915 8th Street 

Rock Island, IL 61201 


Hospital Mailing Address-

Children’s Hospital of Illinois

Patient- Cecilia Padilla Room G-221

530 NE Glen Oak Avenue

Peoria, IL 61637

The hospital also has a virtual E-card program for the patients 🙂 

You can send Ceci a virtual card, the hospital prints them up and once a day delivers them to the patients room. 

Just click the link below, choose location- OSF Children’s Hospital- Peoria, and enter in Cecilia Padilla and room # G-221


Have a good evening everyone! Be back soon. 


Lots of love and hugs, 

Alexis, Cecilia Marie and our family 

~Spina Bifida Fighters and Survivor~ 

Not Another Bump in the Road

Please continue thinking about our girl this morning.

She was able to get some good sleep last night, but Cindy called a bit ago and we have hit another bump in the road.

Ceci’s side wound is starting to secret pus.

They are going to have to do a really good cleaning of the area this morning and it’s very painful to Ceci. Our little girl is struggling with this all and I don’t blame her one bit.

This is too damn much!!!

I am here at home with Aiden and Nicholas and am getting ready to take them to school. I need to get some more things together for sis and then I’m going to start the drive back to Children’s. Our house is an hour and a half away.

Be back a bit later with another update on our girl.

Hope everyone’s having a good morning. Thanks for checking up

Lots of love and hugs,

Alexis, Ceci and our family

~Spina Bifida Fighters and Survivor~