Ceci’s Strength


Our friends at News Channel 4 did a wonderful job sharing Ceci’s story today and what lays ahead as we continue to prepare for her 55th surgery and She heals from this entire ordeal.

Click the link above to see the entire story that aired today along with the wonderful article Shawn wrote about Ceci.

Ceci’s Story ❤

Our local news station and friends at Channel 4 News came and checked on Ceci and did an interview about her story this morning 💜

You can see her interview this evening. They are going to share it at 5 or 6pm.

We’ll also share a link to the story once it’s shared for all our Courage Crew across the country and world.

Thank you so much Shawn and Whbf channel 4!

Beautiful Tuesday Morning

Good morning guys 🙂

We hope that you all slept well last night and for our friends across the other side of the world, we hope your day was wonderful.

Thank you for checking on sis.

Well we are on day 17 of Ceci getting sick and day 12 of this hospitalization and I can honestly say 😁 I believe Ceci is well enough to continue to heal at home.

I’m feeling comfortable continuing her care from her bedroom so we’re hoping that pediatric surgery will agree that she’s stable enough for home care.

Ceci slept so well last night and the only time she had any pain yesterday, was when we cleaned her side and put a new bag on to catch the drainage.

We’ve been awake since 6:30 this morning. She’s watching a movie on her iPad and eating a bag of cheetos. Definitely has an appetite back for her favourites 😁

Pediatric surgery will be coming around in a little bit to go over her plan of care and tell us what’s next in her recovery.

We are still unable to use her cecostomy for her procedure because the wound needs more time to heal back together around the bigger tubing.

It sounds like it’s going to take another month before we see it back to normal.

So until the draining stops we are going to use colostomy bags around her tubing to collect the harmful drainage and try our best to keep it off her skin.

Once we do get the okay to go home, we’ll most likely have to come back weekly for a bit to check the progression of her healing.

Well I better get this girl some breakfast before she fills up on more junk food. 🤔 Although she has lost weight since this all started, so maybe it wouldn’t be too bad to eat some more cheetos 😜 hehehe.

We hope everyone’s having a wonderful day.

We’ll be back later.

Lots of love and hugs,

Alexis, Cecilia Marie and our family

~Spina Bifida Fighters and Survivor~