We’re Home 💜

Good night dear friends 😁

We’re so happy to report that we are back home with our family ❤

We came home yesterday evening and it was such a sweet relief to sleep in our own beds for the first time in a long time.

Ceci did okay on the ride home. It’s an hour and a half drive, so this was concerning but thankfully with Ceci’s amazing state of the art wheelchair she was able to recline all the way to a laying down position by herself and rest.

With the help of the pain medication she did just fine.


Once I got her settled into her bed for the evening and she was fast asleep, my work began.

We have a lot of new medical supplies that Ceci will need for awhile so I had to sort everything, take down reorder #’s and find a good spot to store items in her room that is already overflowing with medical supplies 🥴

This also meant going through and reorganizing daily medications and wiping the heck out of everything here at home with disinfecting wipes and sprays.

It was a long night but things are starting to feel a little bit more back to our normal.


Today Ceci rested most of the day and enjoyed her brothers and dads company when they came home from school and work.

After almost 3 week’s she was finally able to get into a real shower which made her day. No more bed baths 👳‍♀️ and partial hair washings. So that was wonderful.

We did have to do a complete wound dressing change which was hard. Her site is still raw from the tissues getting ripped up so there was pain- but thankfully no where near a 10. Ceci says it’s more like a 3 or 4.


We will continue monitoring her wound and will follow up with pediatric surgery in the next coming weeks to make sure it will heal on its own.

Prayers please that it does and it does it quicker than we are anticipating.

Ceci needs a health time out for sure!!!

No more trips back into an operating room until her Scoliosis Fusion surgery -please Lord Jesus.

Please give this sweet girl a wonderful summer break and allow her body the time needed to heal and recuperate from all this!


Well dear friends I have some pictures I’d like to share but now that Ceci and the boys are resting soundly in their beds my bodies telling me it’s my turn too.

Have a wonderful evening everyone and we will be back tomorrow with another update on our sweet girl.

Thank you all for your continued support as Ceci fights to continue to heal and get stronger each day 💜

Lots of love, hugs and appreciation,

Alexis, Ceci and our family

~Spina Bifida Fighters and Survivor ~