Good morning everyone.

Quick update before we start driving. We are heading back top Children’s Hospital this morning for Ceci’s follow up appointment.

I wish I could say that things have gotten better but unfortunately that’s not true 😞

We had a very rough night last night and this morning has been about the same. Lots of tears and pain and of course fearfulness of what’s to come.

Her side is still leaking way too much and not healing correctly.

Please pray for Ceci. This has been very emotionally exhausting for her and her pains back to a 5 or 6.

I’ll update again a bit later once we see the surgeon’s and figure out a game plan.

Lots of love and hugs,

Alexis, Ceci and family

~Spina Bifida Fighters and Survivor ~