Ceci could use all the prayers we can throw up to Heaven please.
Coming out of recovery was not a good experience for our sweet girl.
Her pain was off the charts and the pediatric intensive care team and her ortho doctor were having a hard time getting it under control.
She’s in the pediatric intensive care unit and they are monitoring her very closely.
She was sobbing when she woke up and was rating her pain level at an all time high. 😭😭😭
It was absolutely awful witnessing her like this. My heart shattered.
It took doses of ativan, fentanyl, volum, i.v tylenol and finally an increase to her epidural to get her calm enough to talk to her daddy on the phone and get her settled.
I held the phone at her ear while he talked her down, and the meds took effect and she finally fell back asleep.
She’s needing oxygen to help keep her levels at a good baseline but this may be due to the epidural as well.
They are trying to stay ahead of the pain tonight by giving her around the clock iv pain medication to allow her to sleep and let her body rest.
I’ll have much more to update tomorrow, including details about her surgery and what’s next.
But for now I just want to sit at her bedside and watch her sleep.
***We are asking for no visitors tonight please to allow Ceci to sleep. ****
This has been a very exhausting and long day for our family. Nearly 8 hours in surgery and her journey with recovery is just beginning.
Please say a prayer for sis tonight before you rest and for our friends on the other side of the world- please say a prayer for her this morning before you start your day.
💜thank you all for your continued love and support.
Lots of love and hugs,
Alexis, Cecilia Marie and our special family
~Spina Bifida Fighters and Survivor ~