Ceci could use all the prayers we can throw up to Heaven please.
Coming out of recovery was not a good experience for our sweet girl.
Her pain was off the charts and the pediatric intensive care team and her ortho doctor were having a hard time getting it under control.
She’s in the pediatric intensive care unit and they are monitoring her very closely.
She was sobbing when she woke up and was rating her pain level at an all time high. 😭😭😭
It was absolutely awful witnessing her like this. My heart shattered.
It took doses of ativan, fentanyl, volum, i.v tylenol and finally an increase to her epidural to get her calm enough to talk to her daddy on the phone and get her settled.
I held the phone at her ear while he talked her down, and the meds took effect and she finally fell back asleep.
She’s needing oxygen to help keep her levels at a good baseline but this may be due to the epidural as well.
They are trying to stay ahead of the pain tonight by giving her around the clock iv pain medication to allow her to sleep and let her body rest.
I’ll have much more to update tomorrow, including details about her surgery and what’s next.
But for now I just want to sit at her bedside and watch her sleep.
***We are asking for no visitors tonight please to allow Ceci to sleep. ****
This has been a very exhausting and long day for our family. Nearly 8 hours in surgery and her journey with recovery is just beginning.
Please say a prayer for sis tonight before you rest and for our friends on the other side of the world- please say a prayer for her this morning before you start your day.
💜thank you all for your continued love and support.
Lots of love and hugs,
Alexis, Cecilia Marie and our special family
~Spina Bifida Fighters and Survivor ~
Www.gofundme.com/supporting-super-ceci
Www.twitter.com/#teamcecistrong
Ceci's Courage Crew & Family Too 
Ceci is most definitely in my prayers as well as the entire family. Your post is heartbreaking. God is in control. Much love and hugs.
LikeLiked by 1 person
Definitely will be praying. Hoping it doesn’t take long to get past this rough patch and the pain subsides. Hang in there Ceci and Mom and Dad also!
LikeLiked by 1 person
Praying all day and will continue…..
LikeLiked by 1 person
Alexis, continued prayers for your sweet girl and for you and all your family! .Praying they keep ahead of her pain.
LikeLiked by 1 person
Prayers prayers. I truly believe in the power of prayer to the heavens. Dear God please wrap your arms around Ceci and help the pain so she can get better and go home with her loving mom and family
LikeLiked by 1 person
I have been thinking of you all day and praying, checking my e-mail for updates! Hoping for good pain control and restful sleep tonight for you all!
LikeLiked by 1 person
Thank you for keeping us updated. Josie’s first question when she saw me this afternoon was if Ceci was out of surgery. Praying for an easy night. Hugs.
LikeLiked by 1 person
Prayers for Ceci and hopes that Mom at least has a sleeping chair. May the pain meds work 500% through the night so everyone can get some rest💞
LikeLiked by 1 person