Good morning everyone and thank you for coming back to check on sis.
Yesterday was a very hard day for Ceci. The pain was too much for our girl and it was exhausting having so many team members coming in and out trying to help her.
She did not get much sleep last night, so she’s been dozing in and out today.
Her pain is a little better but we are still relying on the epidural that’s pushing Fentanyl through her back, valium, iv tylenol, oral norco and medication for the nausea.
She was able to come off the oxygen this morning and have her arterial line removed, so those are good steps.
If she can keep her vitals consistent today and her hemoglobin doesn’t drop anymore, we should be able to move Ceci out of ICU and to the Peds floor.
They came in today to fit her for a support brace and should have it ready tomorrow or Friday. Once we have the brace physical therapy will try to work with her on how to sit with all the new hardware in her back and being in a totally different sitting position.
😌 from what you can see from her xrays above- the before and after xrays show amazing results!
She went from a nearly 65 degree curve, while someone stretches her out with the flexibility she still had- to now being only 30 degrees.
That is huge!!!
Her doctor was very surprised at the results 😁
One ceci is completely healed and recovered we’ll see total results but her doctor said she’s grown a few inches already.
For now we need to focus on pain control, healing and prevention of infection.
Her incision is very big. From between her shoulder blades to her bottom.
He did have an area that was very hard to close, due to the thinness of the skin so doctor did alot of suturing there. We have to watch it very closely and make sure it doesn’t reopen.
She has a long road ahead but she has so many amazing people here and home that have been showing tremendous support 💜
Thank you so much everyone. I don’t know what we would do without you all.
I’m going to go for now. Ceci is finally in a deep sleep so I’m going to try to get a shower in and a hot cup of coffee.
We’ll be back soon.
Lots of love and hugs,
Alexis, Cecilia Marie and our special family 💜
~Spina Bifida Fighters and Survivor ~