Day 3- Scoli surgery

We are in day 3 of this hospital stay for Ceci, for her major spinal fusion surgery and this afternoon is better compared to early this morning.

Around midnight last night ceci’s pain was around a 7 or 8.

Her epidural decided to give us some issues and it took the nurse about 20 minutes to get it restored and boy did we see how much she needs this right now.😭

We had to dose her with 12 mics of Fentanyl, iv valium and cover her in hot packs to get her to stop crying and allow the epidural to kick back in.

We did not get very much sleep but she’s been drifting in and out again today.

Good news in the midst of all the pain, ceci has been moved out of the intensive care unit and has been allowed to go across the hall to the intermediate side.

This is good! Her stats have been holding steady and no fever 😁

She is still on monitors, has a back drain in her spine draining the excess blood, has the epidural and will be monitored closely but moving out of the “fish bowl” is wonderful!

If she continues to make improvements she may get to go to the general pediatric floor either over the weekend or Monday.

She is happier today. That’s because for the first time in days they have allowed her to eat some real food.

Ceci had some bites of a cheese quesadilla and a few bites of vanilla ice cram and chocolate cake.

You know our girl 😊😊😊 her favorite thing in the whole wide world is chocolate! So as soon as she was given the okay to start eating she had momma looking for anything chocolate. 🍫


Not too long ago the brace guy came by to drop off Ceci’s new support brace she’ll have to wear until her back heals.

And boy is it bigger than I imagined.

She’ll wear a stretch tank top under the brace and then clothing over it.

I didn’t even think about the fact that she’s going to need different clothing ☹

Her shirts are definitely not going to fit over her new brace and I’m thinking comfy dresses are going to be best since her incision is from below her neck to her bottom and having pants rubbing would be too much.

We are going to need to do some clothing shopping for sis.


Well guys going to let Ceci get a little bit of rest.

But we’ll be back soon.

Thank you for keeping our girl in your thoughts and prayers.

Lots of love and hugs,

Alexis, Cecilia Marie and our special family 💜

~Spina Bifida Fighters and Survivor ~

http://www.gofundme.com/supporting

http://www.twitter.com/#teamcecistrong

😁 per kind request, cards can be sent to our home for Ceci and we will delivery them to her as dad and family comes up:

Cecilia Marie

915 8th street

Rock Island, IL 61201

Prayers for relief and rest

For our dear friends that are awake, could you please say a prayer for Ceci this morning.

She is struggling with alot of pain and uncomfortableness early this morning and we are having a hard time getting her the rest she needs.

On top of the back pain she’s been having pains in her hips and thighs ☹

We’ve been awake since a little past midnight trying to get this under control.