This girl is fighting so strong!
Day 4 of this admission and she’s doing better than any of us expected for such a big surgical procedure.
She lasted 3 hours in this brace today, leaning against pillows and actually fell asleep in it.
I’ve been sitting in this stool in the picture almost 24/7 to help calm her and to be honest it’s been nice 😊
With her being a teen, I don’t get many chances to kiss this sweet girl anymore or rub her head to calm her and this week I’ve been able to. Can definitely tell I’m a mom to a teen.
The brace seems to help ceci’s back muscles by adding the support she doesn’t have yet but it is difficult to get on. Poor girl cries each time we have to put it on.
We have to log roll here side to side and right now that’s a lot of pain and discomfort for her.
We’re hoping as she heals this will become a much easier process on her. The orthopedic doctor does not want her bending, lifting anything or twisting her body until her body has time to heal. So she’s a total assist right now. It’s taking 2 people to help care for her.
The plan over the weekend is to allow her to rest and continue to try and find the right oral pain medications to control her pain and allow us to work more on sitting up and moving.
They are going to try and stop her epidural tomorrow and see if she can tolerate it.
If she can tolerate just oral meds until about 1pm, they will pull her epidural which will be a big step for momma.
Please pray for good results with this test in the morning.
Ceci is looking forward to tomorrow 😌
Her adopted grandma miss Cindy is coming to spend the day and night with her.
Lol, she loves me but says she needs a mom break. So when grandma gets here tomorrow I’ll be making the drive back home to spend the day with our boys and do some laundry.
Very grateful for miss Cindy. It’s hard for me to leave Ceci’s side when she’s in the hospital but Cindy is an amazing RN and friend 😊 so it makes leaving her much easier.
Ceci got a nice visit today that made today so much better 💙
Dad and her little brothers Aiden and Nicholas came to spend the evening with her.
They ate chocolate together and played games. Ceci even beat her dad in Yahtzee, one of her favorite games.
It was so nice seeing our guys. It’s hard for our family when we’re apart like this.
The boys miss Ceci like heck! But know she’s here to get better and that she’ll be home soon.
Well guys the staff gave ceci some pain medication a little bit ago and she’s resting peacefully now so I’m going to lay down myself.
We hope everyone is having a good beginning of the weekend.
Thank you for all the continued support and love that everyone has shown Ceci and our family.
Be back soon.
Lots of love and hugs to you all,
Alexis, Cecilia Marie and our special family 💜
~ Spina bifida Fighters and Survivor ~