Look who sat up today 😁😁😁

Huge step for our beautiful girl!

Today is much better than yesterday and we are hopeful that tomorrow will be better than today 😊

She wasn’t able to sit in her chair for long because she’s too wide for her chair with her brace on and much taller since her surgery ☺️ but we hope that Numotion can come out in the next day or 2 and help get a better fit.

We’ll need her to be able to fit in her chair to eventually make the long ride home in our van.

I gave our sweetheart girl a manicure 💅for being so brave with her physical therapy goal of moving off the bed into the chair.

😊 she’s such a girlie girl and loves being pampered. She’s looking forward to healing so she can get her hair cut and colored again.

I’m looking forward to it too. It makes her smile so big and that makes me smile.

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Ceci’s wonderful orthopedic surgeon- Dr. Akeson came today and changed all the dressings on her back and put water proof sealing tegaderm on everything.

The top portion of her incision looks wonderful. Here’s the top portion uncovered.

The bottom is going to need alot more time and management and we have to be careful with keeping it completely dry and clean, but so far it looks good.

No signs of infection 😁 and she continues to be fever free.

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To help manage her pain a bit better we have Ceci on an around the clock pain medication schedule and it seems to be working great.

She’s getting extra strength tylenol every 6 hours, valium every 6 hours and oxycodone every 4. We’re also continuing to use hot packs on her hips and thighs to calm the muscle spasms.

I also went to the local Walmart here in town yesterday and used the little bit of money I had left to get Ceci 2 big, fluffy, comfy, body pillows to help get her adjusted and on her side to relieve the pressure on her back.

I’m glad we’re able to turn her on her side now. When we changed her dressings earlier we noticed that she has some skin breakdown on her lower back 😞 so we’re treating it with some neosporin and are covering it as well.

She’s also continuing to get antibiotics to treat her urinary tract infection.

Honestly she has a lot going on right now and alot of people managing her stay, but I know she’ll get her better and through this all.

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This girl is one hell of a fighter!!!

I’m very proud of the strength she’s shown through this very rough medical journey.

I will be the first to say I could never do this.

I’m amazed by her strength and her ability to still smile.

She’s a fighter 💪💪💪

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The trauma nurse is coming in soon to pull Ceci’s mediport needle and reaccess her with a fresh needle and set of tubing, so I’m going to sign off for now.

We’ll be back soon.

Lots of love and hugs,

Alexis, Cecilia Marie and our special family 💜

~Spina Bifida Fighters and Survivor ~

http://www.gofundme.com/supporting-super-ceci