Good afternoon everyone 😀
I have wonderful news to share!
Ceci slept through the entire night and was not woken by any pain or spasms this morning!!! FINALLY! We found a mix of medications that will control her pain, muscle spasms, nausea and help increase her appetite so she wants to eat and drink.
Of course we are very happy about this and so is her medical teams. We have been working hard to brain storm different ideas this past week to get things under control and get us closer to home and we FINALLY have it figured out 🙂
She slept almost the entire day yesterday and the night and I am happy to report that she is awake and feeling good.
Her wonderful Doctor- Dr. Akeson says that although it doesn’t seem okay for her to sleep that long, her body has underwent one of the biggest surgical procedures and she needs that type of sleep for her body to heal. That made me feel better hearing this from him.
She has some visitors coming to see her today, so Cecilia is motivated to stay awake and we’re hoping to get her up in her wheelchair. Our goal is 2 hours upright in her brace today. This is the goal she must meet to be able to go home now that her pain is controlled and all the other concerns have been addressed 🙂 We need her to be able to tolerate 2 hours because we have an hour and a half drive from the hospital to home alone.
Fingers crossed she can do it. She wants to get home so she can lay in her own quiet room and bed and continue to heal there.
Technically Ceci was suppose to start school this past Friday. But it sounds like she may be doing the first 2 months from home.
I was talking to her doctor about her recovery time at home and he has wrote for her to be out of school for 2 months with home tutoring when she is able to tolerate it.
Of course Cec is not happy about this but understands that she needs to heal and we need to protect her from all the germs that fill a junior high school right now.
Once we are home we will be taking it a day at a time. This is the hardest journey this girl has been through but we know with faith, patience and love it is going to turn out great and the results in the end are well worth it.
Well I’m going to go for now.
Gotta get this girl motivated and moving 🙂
We’ll be back soon with another update
Thank you all for your continued love and support ❤ ❤ ❤
Lots of love and hugs,
Alexis, Cecilia Marie and our special family.
~Spina Bifida Fighters and Survivor~