Ceci's Courage Crew & Family Too

Good afternoon everyone.

Ceci’s hanging strong.

She’s continuing to get around the clock antibiotics and some time later today they’ll be taking her back into the Operating Room to debrid the tissues in her back that are starting to die.

She’ll have an incision and drainage and they’ll also explore the site to find out how deep her infection is.

She’s on some heavy iv pain medications at this time so she slept most of yesterday away and this morning.

Her pain is very well controlled at this time and she’s awake working on Friendship Bracelets for her wonderful nursing staff here at Children’s Hospital of Illinois.

She didn’t eat or drink very much yesterday, but that’s expected with how crumby she’s feeling. And she’s NPO today to prepare for surgery.

I’m hopeful that tonight she’ll be able to eat and hopefully she will. It’s been a battle getting her appetite back since this all began.

Ceci’s surgical site- wound culture, is continuing to grow 😥 so we do not have results yet. Hopefully those will be finalized tonight so we know what bacteria she’s fighting and if we need to change or add iv antibiotics to her care.

🙏🙏🙏 prayer warriors please continue to pray for our fighter. And good thought Angel’s, please continue sending good vibes up and out for sis.

I’ll let you all know when she’s heading into surgery.

Lots of love and hugs,

Alexis (momma), Cecilia Marie and our special family 💜

~Spina Bifida Fighters and Survivor ~

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