- -Good news and bad news –
Good news- Ceci’s headaches have ceased since Dr. Linn came in yesterday morning and pulled the internal back drain and stitched it up. Also her tummy is continuing to go down and she’s back to a general diet without any more Ileus issues 😊
Bad news- The wounds vac that is sitting on top of Ceci’s incision that has been dry and empty since placement last Thursday, started collecting dark brown fluid last night. Her lower back pain has also increased throughout the night and early this morning requiring morphine doses every 4 hours. Also the top of her left leg is numb and the leg spasms have returned 😖
Our sweet girl cannot seem to catch a break and we’re all so frustrated!!!
She’s begging for me to take her home and it’s breaking my heart completely 💔 She’s home sick and I do not blame her one bit. Im extremely home sick as well and I’ve been able to get home for a few hours at least once a week.
I went home for a few hours yesterday (so thankful grandma Cindy came up to stay with her 💜) to get our laundry washed and Ceci’s blankets cleaned up and spend time with her dad and the boys.
I was so happy about being able to pick up my boys from school and spend time with Shawn.
But when it was time to leave again our little guy Nicholas had a very rough time 😢
Our little guy Nick just turned 7 years old last Friday and we planned his birthday party for this coming Sunday (his 1st big guy party), before Ceci’s big surgery in July- so that Ceci would be healed from the spinal fusion and they would be ready for some fun.
Now that Ceci’s been so sick and we’re on week 5 inpatient she won’t be able to be there and he’s upset about it.
While I was leaving yesterday night to come back to the hospital he cried and cried and begged me to stay. It teared me up having to leave again, but after many hugs and kisses he walked to his room and let me get our bags together and walk out to the car.
I was getting ready to back out of our drive way when our little guy came flying through the back door crying again 😭
I stopped and I held him for a bit and got him calmed down enough for him to say, please mom- I won’t have a birthday party if you guys will just come home. 😭🥺😭
I ended up spending the first 30 minutes of my drive back to the hospital last night crying my eyes out and begging God to heal Ceci and bring our family together.
Our sweet girl is going through hell physically and emotionally and honestly so is the rest of our family.
My little boys have been the bravest they can be but they are very worried about their older sister and miss us both terribly.
Ceci has a long road to recovery and I pray everyday that her body isn’t giving up and that the beautiful positivity and love that she has in her heart won’t go out due to all these very frustrating set backs and relentless pain.
This girls one hell of a fighter and I hope with us all continuing to cheer her on and show her she’s NEVER alone, she’ll kick this hurt away!
Please continue to pray for healing, patience and relief from the pain for Sis and also say a prayer for Ceci’s little brothers and her dad back at home.
They just came in and did a bunch of lab work on our girl, so I’m going to sign out for now.
Lots of love and hugs,
Alexis, Cecilia Marie and our special family 💜
Caring for Courageous Cecilia Marie-
Ceci’s Medical Needs Amazon Wish List-
Ceci’s Dream Wish List for Fun-