Ceci will be heading back into the Operating Room around 10:30am tomorrow for the 1st of 2 needed procedures.
Dr Akeson and a radiologist will work together to look at her surgical site and also try to pull off some of the fluid building up around her spinal cord so it can be cultured and to find out if it’s strictly infection or csf.
Turns out there is 2 different fluid collections showing on the CatScan. The one they are highly worried about is deep in her back.
Palliative Care is now following Ceci and her medical struggle.
Had to start her on a Morphin PCA pump today because her pain is out of control.
Due to some very bad pain we didn’t get to sleep until nearly 2am this morning and were back up at 6am for the same pain.
The pump is helping to manage her pain much better.
Today is Day 35 and we’re no closer to getting our sweet girl home.
We continue to worry about our sweet girl and pray that this war on her body is over soon.
I’ll update as soon as I can again tomorrow.
Lots of love and hugs,
Alexis (mom), Cecilia Marie and Our Special Family 💜