Good evening everyone, mom here 😊

Quick update on our girl before I head to bed.

Ceci is doing much better this afternoon and evening.

Yesterday evening was hard for our girl between the vomiting and stomach pain.

We ended up video chatting for over an hour and I was close to driving right back to be with our sweet girl when the Reglan and liquid Morphine finally kicked in and she told me to go to bed 😊Lol.

After that the nurse told me she slept soundly until 4am.

The girls video called me again at 4am regarding some issues with her side wound (from where her cecostomy use to be) but we got it all figured out and she was able to get back to sleep until 6am rounding.

They tweaked some more of her new medications again, gave her another IV Bolus of fluids and today was sooo much better.

She didn’t have any repeat stomach pains, vomiting and the nausea is gone 😁

She hung out with these wonderful volunteers today (picture below) and even met some new patients.

She made friends with a sweet little girl that’s her brother Nicky’s age (7) and I heard she was very helpful in distracting her from having a blood draw.

Being in the hospital for over 2 months now and meeting other kids here, brought sis to a realization tonight and it was wonderful to hear all about it.

As we video talked before bed Ceci told me she finally knows what she wants to do when she grows up.

She wants to go go school to become a Child Life Specialist and work with kids on the pediatric floors to bring them happiness and smiles in the hardest times.

Cec adores all the amazing gals that work at the hospital as Child Life Specialists and she said seeing the way they can bring happiness and big smiles just inspired her.

We love those wonderful ladies!

I hope that Ceci pursues this dream. I know she’d be great at it!

Well guys I just talked to dad and him and Ceci are getting ready for bed. So I’m going to get these hyper little guys settled down too and get some sleep myself.

I just wanted to let you all know our girl is much better today 🥰

Have a wonderful night dear friends.

Lots of love, hugs and appreciation,

Alexis (mom), Cecilia Marie and Our Special Family 💜

~Spina Bifida Fighters and Survivor ~



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