Sweet girl had a rough morning with a headache but she’s doing better this evening.

VNHA is sending a nurse out shortly to get her iv fluids going.

Unfortunately the pump we brought home from the hospital isn’t working so they are loaning us one for tonight’s Bolus and then we’ll be receiving a new one tomorrow morning in the mail along with all her fluids and port line supplies for the next few weeks.

She’s been spending her afternoon making friendship bracelets and listening to music 😁

We hope everyone’s having a wonderful Thursday evening.

Thank you for praying for little miss and our family ❤

Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family

~Spina Bifida Fighters and Survivor ~