Good morning everyone and thank you for your vigilant prayers and good thoughts through the night 🙏
We arrived in Peoria yesterday evening and our first challenge was to get Ceci’s pain under control, admit her in and speak with her doctors about these new symptoms our girl is experiencing.
Today we’ve spoken with most of her teams and it’s going to be a full work up day.
She’s going to have an ultrasound of her liver, gallbladder and kidneys.
Then xrays of her legs and hips.
Followed by a CT of her abdomen and more blood work.
There are several concerns with her pain being so intolerable and her CRP being through the roof.
There’s been talk about many possibilities- kidney stones, kidney infection, gallbladder stones, liver disease or damage, another fracture in her legs from her osteoporosis or bowel obstruction.
If these can all be ruled out then of course we’re back to the major and scarier threat- does she have another spinal infection that would infect her 2 shunts?!?!
Her pain seems to be worse today 😭
Me and the nurse turned her to get a transfer mat under her and our sweet girl cried and cried.
I hate seeing her in so much pain again. It just breaks me down.
I’m praying so hard that we can figure out the source of her pain quickly and help relieve the pain for sis.
This strong little fighter needs much more time back home.
Be back as soon as I know more.
Lots of Love and Hugs,
Alexis (mom), Cecilia Marie and Our Special Family 💜
~Spina Bifida Fighters and Survivor ~