It looks like one of our posts didn’t post.

Sorry dearest friends.

We are home 💜💜💜

I brought Ceci home on Wednesday evening.

😊 Good Afternoon everyone!

Thank you for coming by to check up on sissy and our family.

Today’s been a good day. I’m so happy to be able to post that.

Ceci slept until around 10:30 this morning and didn’t wake up one time in the middle of the night with pain or any problems!

Hehehe 🤪 It was so unusual for us that I looked at my clock at 9am and launched out of my bed to check on her, because I was worried that maybe she dropped her phone off the end table in the middle of the night and couldn’t call me.

But nope she was just tired and sleeping soundly.

She even ate a donut this morning and drank an entire chocolate milk bottle. Such a good sign that sis is feeling better. Her eating has been a big problem since this all started back in July.

I got her in and out of the shower, her wounds dressed and everything else needing to be completed with minimal pain and she’s been sitting up in her wheelchair since happy and looking like our Ceci girl again.

The only negative has been her heart rate.

Which is no big deal. It was back in the 125’s this afternoon so I’m running her 1,000 ml fluid Bolus through her mediport now. It’s been going for about 30 minutes and it’s already coming back down 😊

I have a very grateful heart today.

Ceci’s feeling good today which is something to be oh so grateful for after this very long medical journey- but we’re also very grateful for all the amazing and big hearted friends we have 💜

We are blessed beyond words.

Our wonderful friends at my work place MVRBC, threw another ~Ceci’s Cafe ~
event yesterday- Walking Taco bar and so many people came by to buy lunch in Ceci’s honor and support our family and tell us just how much they love Ceci. And it meant so much ❤❤❤

My coworker and friends put so much hard work into planning it and we’re touched beyond words.

Thank you dearest friends and supporters. Thank you! I’m very proud to work with so many caring and kind people 💜💜💜

Then yesterday evening in the midst of all the craziness that’s been going on between going back and forth to the hospital in Peoria, our sweet friends Ercie and her daughter Riann came by to deliver supper for our family.

They brought a delicious spaghetti dinner from Grinders (1st time we had it and it was so good!!!) and they surprised the kids with ice cream from Whiteys (yum yum) and all the toppings to make sundaes.

It made their day so much and they ate all the ice cream in one night 😁

It helped out so much. Thank you again girls for bringing us dinner!

Tomorrow VNHA will be coming by to change Ceci’s mediport needle and dressing and then Monday we’ll start up all Ceci’s therapy sessions again.

Of course we’ll take it easy and do what’s best for our girl.

But she’s already voicing that she’s ready for this fight back to being as healthy as possible and regaining her strength in her arms, back and stomach that she lost so many years ago from the Scoliosis and Lorodosis.

She’ll have physical therapy 3 times a week and occupational therapy 2-3 times a week as well.

It’s going to be a very busy time for us over the next few months but we’re ready!!!

We love the phrase from Lilo and Stitch because this family takes it to heart and lives by it 😘

O’hana- means family. Family means nobody gets left behind or forgotten.

We’re in this together ❣

Well it’s time to disconnect our girl so I’m going to go.

Hope everyone’s having a wonderful weekend.

Lots of Love and hugs,
Alexis (mom), Cecilia Marie and Our Special Family 💜

~ Spina Bifida Fighters and Survivor ~

P.s.- The Iowa Hawkeye Wristlet and gift card Raffle is being drawn on Monday. So if you still want tickets please let me know.

I’ll be at the Rock Island Hyvee at 1pm tomorrow in the parking lot closest to the gas station with tickets 😁

You can stop by and see me. Tickets are $3 a piece or 2 for $5.

I’ll be there until 1:45. Thank you guys!