Good evening dear friends and thank you for coming back to check up on our girl 😊
Ceci had a much better afternoon and evening today.
She’s happy, smiling and being silly with me and her little brothers like usual.
She even ate a good amount of dinner. A bowl and a half of taco in a bag and is enjoying some chocolate ice cream now while laying in bed getting her iv fluid Bolus and watching Riverdale.
Her vitals are all good tonight and she’s looking like our sweet girl again. Her color looks good and no bags under her eyes.
She had a wonderful weekend with friends and family.
Saturday some of her besties came to the house to hang out and our girl was all smiles 😁
They listened to music, pigged out on pizza and junk food and for those 6.5 hours Ceci was just a normal teenage girl with no talk about medical agendas or conditions.
It was the happiest I’ve seen her in months and we all appreciated it.
I’m very thankful that she has some of the sweetest best friends that have stood by her through the hardest times. I hope they know how special they are to Cec and our family ❤
So Saturday was a ton of fun but then Ceci got another special treat on Sunday evening.
For the first time in 3 months Ceci got out of the house/ hospital and went somewhere.
2 of her besties and their families invited her to help them at a Trunk or Treat event for their church, volunteering to pass out candy to the kiddos and hang out for service and a dance party.
She was so excited about getting out and the girls did a theme costume together. They were The Pink Ladies and they looked great!
Hehehe 🥰 she talked about how fun the church was and the even event until she fell asleep.
It was wonderful seeing her so happy again.
Ceci slept peacefully until about 2am this morning.
Then the worries started.
She called me to her room and she was sick.
Vomited several times, complained about awful tummy pain and bladder spasms and was very anxious and uncomfortable.
I ended up giving her some extra strength tylenol and another dose of Pyridium to calm her bladder.
I also had to change out her Foley catheter and place a new kit because her bladder was so clamped down that she wasn’t passing any urine and was swelling up 😥
It was awful early morning.
Soon after the rain started up so the thunder wasn’t allowing her to sleep.
Around 4 I tried to go back to sleep for an hour.
I was back up at 530 and when I went to check up on her she had the head of her bed up and she was sleeping sitting up.
I took her ear buds out, shut down her ipad and laid the bed down.
She slept for most of the morning while Grandma was watching her.
When I got home I saw what might have been causing all the pain and discomfort last night. 😫
Ceci’s Foley catheter bag was almost full even after emptying it at 530am again.
And it was full of blood clots. Im pretty sure with how sick she was last night and what I seen this morning that Cec may have passed her kidney stone.
It was a hard early morning but it would be good if it was gone. We go back to Children’s Hospital in a few weeks for another kidney and bladder ultrasound so we’ll be keeping our fingers crossed that it’s gone.
But please don’t worry friends. She’s doing much better this evening and we’re hoping for a restful night tonight.
Well I better get going. It’ll be time to disconnect Ceci’s Mediport soon.
Hope everyone’s having a wonderful evening.
To everyone that bought raffle tickets for the Hawkeye Wristlet filled with $200 worth of giftcards, make sure you stop by her page tomorrow 😀
We’ll be drawing the winning ticket and of course it’ll be recorded to share.
Be back tomorrow afternoon.
Lots of love and hugs,
Alexis, Ceci and our special Family 💜
~Spina Bifida Fighters and Survivor ~