Better Day

Good morning dearest friends and welcome back.

Thank you for taking time to check up on our girl 😊

We just heard back from the Peds team and it sounds like we are slowly getting test results in for what was causing sis to be so ill.

Her urine culture is not finalized yet but she does have a nasty UTI again. We are waiting on the specification of the bacteria but so far we know the colonization count is over 150,000 and it is a Gram negative bacteria.

Pesky kind! Usually when Ceci’s infections come back like this it is either Pseudomonosis, Eccoli or Klebsialla.

We will wait on the final results to have the specification and then Infectious Disease will let us know if she needs a different IV antibiotic to get our girl back to 100%.

She received a heavy dose of IV antibioitics in our local ER and they are also treating her here at CHOI with IV Cefepime every 8 hours.

As of now, she will receive 7 days of Cefepime every 8. But again this is based on if the bacteria ends up being a resistant kind.

She’s on fluids for her dehydration and to flush out her kidneys and bladder.

Her GI panel also came back and she tested positive for a tummy virus called Astro virus.

It’s been causing the tummy pain, nausea, diarrhea and dehydration. And then to make it harder this darn UTI has been causing her bladder spasms.

So we know that Ceci is fighting 2 different battles right now, but the good news is that she is doing better 😊

She’s currently eating Pizza for breakfast, watching Grey’s anatomy and her vitals are looking great with the exception of the Tachycardia. But the Tachcardia is on the lower end for her being sick- 125 so that’s a postive.

She’s wanting to get up and out of this hospital bed, so that’s another big positive!

After she finished her food, we are going to help her get cleaned up a bit and into some comfy PJ’s and up in her wheelchair for a bit.

She’s on contact precautions, because of the tummy bug so she’s not able to leave the hospital room but it’s a step to getting back home.

We know that she will be here until at least Monday- which is a bummer but with sis’s history of resistant UTI’s it’s much safer to have her here in Peoria inpatient until we have the resistance panel back for the bacteria.

Then once we do, it sounds like we’ll have clearance to bring her home and continue fluids and IV antibiotics at home until we have ran the course of treatment.

I’m grateful that over these 14 years we have had such amazing medical personnel caring for sis that have been kind enough to teach me so much about medical procedures and caring for her numerous conditions.

Because of these wonderful people ❤ I am proud to say that the majority of Ceci’s medical needs can be completed by my self, allowing us to keep sis at home for many treatments instead of inpatient.

I appreciate this more than I can express. I have the knowledge of a Nurse, the understanding of a Doctor and of course the heart of a mom ❤ ❤ ❤

Well guys I need to sign off for now, but will be back soon.

As always we are grateful for your continued love, prayers and support.

Thank you for being a part of #Teamcecistrong

Lots of love and hugs,
Alexis (mom), Cecilia Marie and Our Special Family 💜

~ Spina Bifida Fighters and Survivor~

❤ With Love Shout Outs ❤

Thank you so much to Auntie Kathleen for helping us with gas funds to make the 1.5 hour trip here and back. And for always being there for sis and our family.

Thank you so much to Momma C. for also helping us with Dinner for the boys during the Choas of sis being hospitalized and for the donation to her VenMo medical fund. Your support means so much!

It really helped so much ladies. Thank you ❤