Well this isn’t the good news we wanted to post 😪🥴😕
We are waiting to get a room on the children’s Floor here at Children’s Hospital of Illinois.
Just had an appointment with Pediatric Surgery and Ceci’s Power Port needs to be replaced.
Her port stopped working on Tuesday and she needs hydration. So she’s getting admitted today and surgery tomorrow.
Prayers that crisis is able to get a deep peripheral line started on our girl and are able to get her fluids.
Update later when we get to a room and have a plan.
Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family 💜
~Spina Bifida Fighters and Survivor~