Hi guys, Mom here.
It has been a rough night for our girl. She’s been in so much pain all night and this morning that we only got 2 hours of sleep.
Her entire body is hurting. And I can’t comfort her 🥺 Just touching her skin causes her to cry out in pain.
They have been hitting her with wide spectrum antibiotics since we were at our ER.
We’re currently at University of Iowa Children’s Hospital.
She’s been getting heavy antibiotics- Ampicilin, Rocephin and Zosyn by iv.
Ceci is septic and we just found out a few minutes ago that…..
she has a horrible blood stream infection. She’s positive for gram negative bacteria.
This is very scary but explains why she got sick so fast and so severe.
We finally have her fever and pain at a controlled level with around the clock Tylenol, ibuprofen and Atarax.
As of now Ceci girl is stable vital wise, but she’s not out of the water 😭
The next 2 days will be critical and will tell infectious disease and the team what to do next.
Please, please pray hard with us that she gets better soon.
And that we can continue to control her pain and she can rest.
She was so sick yesterday and this morning my heart hurts so bad. We have been so worried about our girl.
They just came and drew another round of blood cultures off her port and are running them to see if the antibiotics are helping. We should know more tomorrow.
Thank you so very much for following with us on this and praying so hard for Ceci.
And thank you to everyone that sent me Birthday wishes and love yesterday.
🥴 I kept forgetting it was my birthday because I was so worried about sis. But I appreciate the love guys 💜
Be back soon
Lots of love, hugs and appreciation to you all
Alexis, Cecilia Marie and Our Special Family
~ Spina Bifida Fighters and Survivor ~