Better Evening

Evening everyone, thank you for coming back by to check on Cec.

Our girl slept most of the day away today but I’m happy to say she’s sitting up with the head of the bed- watching Glee and eating some food 🙂 right now.

Around 3:30 we had to wake her up and see if we could get her BP up and because they ordered an ultrasound on her kidneys.

She was exhausted but did just fine through the test. Due to the decrease in her urine output there was concern that she may have swelling in her ureters or another stone causing a blockage.

Happy to report that her kidneys look good along with the pathways. She does have a kidney stone on the left side but it’s in a good position and isn’t causing any issues. So for now they are watching it.

Now on to some harder news 😟

Ceci’s 2nd set of blood cultures are growing bacterial infection again. This is after 3 rounds of iv antibiotics. Her CRP levels are also rising.

They are drawing blood cultures everyday so by tomorrow we should have the next set of results from this morning and we’ll just keep going daily until we get a negative.

If we continue to see positives, infectious disease will re-evaluate our course of treatment for sis.

Fingers crossed tomorrow brings good news.

Thank you to everyone that has shown such support during this difficult time 💞

Thank you to angels- Cathy B., Tina & Dino, Gina M., and Nina P. for giving to help our family during Ceci’s hospital stay.

Be back soon.

Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family 💜

~Spina Bifida Fighters and Survivor ~

Support to help with Ceci’s Medical costs that aren’t covered by insurance, and expenses related to mommas hospital stay-
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Hospital Mailing Address

Day 3 and Praying

Mail for Ceci

It’s 1pm here in Iowa City, Iowa and Our girl is still fast asleep.

This infection is really taking it out of her 😔

She continues to get around the clock iv antibiotics in hopes that we can beat this, and get our sweet girl back to being healthy and happy.

She hasn’t eaten much the past few days, her heart rate and blood pressure is low and her urine output is decreasing.

To say we’re worried is a understatement……

We’re going to wake her shortly to help get her cleaned up and hopefully figure out some things.

It was a very long night with concern and me standing at the monitors watching closely.

I’ve been in close contact with her dad and all the kids back home. It’s so hard because they can’t be here right now, I can’t leave her side and dad is struggling to stay at work because his heart is hurting with worry about our baby girl.

Waiting is the hardest part.

We’re waiting to see if the antibiotics will help… we’re waiting on the next set of blood cultures to come back… we’re waiting for the next set of pain medications to keep her comfortable…. we’re just waiting!

I know we have a huge and amazing team of prayer warriors and good thought angels by our side and we can’t say thank you enough for that ❤

I’m sorry that I can’t respond to each and everyone of your messages, emails and phone calls but please know we’re reading them all and holding your words close to our hearts.

Continue to pray with us for healing for sissy girl.

Lots of love, hugs and appreciation,

Alexis, Cecilia Marie and Our Special Family 💜

~Spina Bifida Fighters and Survivor ~

To help with Ceci’s hospital costs not covered by insurance, medical expenses and expenses related to our stay-

🎗Thank you for support 🎗



Wide Awake and Worried

Morning everyone.

Hopefully our friends on this side of the world are resting peacefully tonight and Our friends on the other side are having a much better day.

We’ve been awake for a few hours now.

Sis is having some issues with low bp so they are monitoring her closely because of the sepsis.

We are grateful to say, even though her bp is low she is coherent and her state of mind is our positive sweet girl.

She’s exhausted but understands why they have to keep waking her and retaking vitals.

They’ve ordered another set of labs, including blood cultures so they’ll be in soon to conduct those too.

Please continue to pray for sis.

That the Antibiotics knock the sh*t out of this bloodstream infection and that she remains fighting strong!

Be back if anything changes tonight……never mind I meant early this morning. Nights over 😳 I don’t think my mind is all together right now.

The worry, stress and lack of sleep have me in the twilight zone.

Be back soon

Lots of love, hugs and appreciation,

Alexis, Cecilia Marie and Our Special Family 💜

~Spina Bifida Fighters and Survivor ~

To help with Ceci’s Medical expenses and hospitalization stay-
Venmo @Alexis-Leihsing