Getting closer to home

Look at our girl!!! She’s doing so good

Hi everyone, Mom here.

Today’s been an up and down kind of day for sis. Her g tube has a little bit of skin breakdown so it’s been painful and she woke to the doctors doing wound care on her tummy, so it was not a good morning.

She dealt with quite a bit of pain for a big part of the day, but she’s doing better right now.

They weaned her off the PCA pump today so it was a rough transition but mommas understands that it’s a bigger step to getting her home and healing so she’s been fighting the pain.

But she fights it so strong 💪

She did another huge thing today.

Instead of using the hoyer lift she worked hard to get into her Wheelchair with just the assistance of myself and her wonderful nurse Jenna.

First time she’s been up in her Wheelchair for almost a month. It was wonderful seeing her up in it. She was able to handle it for 2 hours and then we had to get her back in bed. But she did it 💕

One day at a time, one step at a time 😊 and she’ll be home before we know it.

Ceci’s dad came up Saturday to spend the day with Ceci and I. She was so happy and he even tried bribing her to eat with these delicious Hurts Donuts 🍩 😋

She’s really hoping to be home next week before Halloween but we’ll leave it in God’s hands. I’m thinking a Halloween party is in order for our family if we do make it home by then 👻

We continue to thank you all for all the love, support and kindness you’ve shown to our family. Thank you for helping us keep our heads above the water and for making sure that Ceci, our boys back home and our furry family members have what they need.

It’s very hard with dad working on the road, me being with Ceci out of town and grandma taking care of our babies. So having groceries delivered to our home from hyvee, Walmart and Swann’s , Amazon essential items and medical supplies means so much.

Be back tomorrow 🙋‍♀️

Lots of love, hugs and Gratefulness 😘
Alexis, Cecilia Marie and Our Special Family 💜
~Spina Bifida Fighters and Survivor~

Support to help with Ceci’s Medical costs and costs related to her stay.
Ver. code- 5931

Ceci’s Amazon list

Our Family’s Amazon wish list:


Thank you dearest Cathy 🥰🥰🥰🥰
Thank you grandma Cindy and grandma Sue 🥰🥰🥰🥰