Be Strong sis β˜Ή

πŸ˜”πŸ₯ΊπŸ˜’
Today has been a very hard day for Cec.

They gave her some medication shortly ago to mini sedate her so they could do the 5th Covid swab test she’s had since we’ve been here, and they had to place an NG tube to administer much more medications to clean out her body.

My poor girl 😭 The medication made her out of it and the NG tube upset her so much. She cried and cried and so did I. She misses everyone at home so much! I just laid in bed next to her and held her until she fell asleep.

She’s sleeping soundly now, she’s so exhausted and just wants to go home.Tomorrow we start week 3 and she’ll be heading into the Operating Room at about 10am.

I’m so anxious and worried about my sweet girl. This is too Damn much! My heart hurts πŸ’” for her.

Alexis, Cecilia Marie and Our Special Family πŸ’œ

~Spina Bifida Fighters and Survivor ~

#TeamCeciStrong

Support to help with Ceci’s Medical costs that aren’t covered by insurance, and expenses related to mommas hospital stay-

https://venmo.com/Alexis-Leihsing

Verification code- 5931

Amazon wish list to help our family:

https://www.amazon.com/hz/wishlist/ls/2K2V5KLG8IGOT?ref_=wl_share

Day 9

Ceci has received so much cheer Mail πŸ’Œ

Thank you so much for showing her so much love ya’ll! You brought so much love to her heart and smiles to her face πŸ₯°πŸ˜„πŸ˜˜

Ceci is doing well today. She’s sitting up in her Wheelchair watching Pitch Perfect 3 and just finished her dinner. Her dad came by to visit and brought her Freddy’s for Dinner. Brought some of her favorites- cheese curds and a chicken sandwich.

Ceci’s been dropping weight and having some difficulty eating because of how sick she was and the strong antibiotics. She’s lost nearly 10lbs so they have been doing calorie counts and pushing Ensure. It was wonderful seeing her eat well this evening. I’m sure getting to see her daddy helped with that a little.

Ceci is getting her iv Zosyn continously now instead of every 6 hours now. She’ll continue to get it for another 10 days to ensure her body is rid of the bacteriema. But things are heading in the right direction.

We’ve received 3 negative blood cultures now and her labs are stabilizing. Her liver enzymes were 3 times higher than normal but they are coming down too so that’s good to see.

The greatest news is that her Echocardiogram came back clean! No infection around her heart and the valves are all functioning well. Thank goodness 😊 We were so worried about that.

We’ll continue to stay here at Iowa City Stead family hospital until things are stabilized.

And Monday brings ahead a day of surgeries for our girl.

We just aren’t sure the entire plan yet. All of the departments will be getting together for a conference of her health and what will be best for sissy. We can’t have this happen again πŸ˜” she’s been fighting infections for so long.

Prayers that we have a full game plan soon.

Thank you so much to everyone continuing to walk with us on this journey. And for keeping Ceci and our family in your hearts.

Ill be back soon.

Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family πŸ’œ

Back from Surgery

Ceci did good during surgery and the Line team was able to place a PICC line in her left upper arm.

The angels were looking after her all weekend. When we rolled Ceci into preoperative waiting her deep peripheral line staring going bad πŸ™„ Thank you lord for giving her the weekend to rest.

She’s sore from them tunneling through her upper arm muscles but is resting well with her pain medications.

With her being paraplegic, and using her upper body for so much her arm muscles are strong for sure.

We have the cardiac ultrasound specialist in with us now. They’ve ordered a heart and chest ultrasound because of the PVC’s Ceci has been having on and off and also because of how severe this blood infection was πŸ˜”

I’m so glad they are being proactive about her care. But I’m going to be a hot mess until we get the results back. Our girl has battled so much in these past 15 years, please don’t let her heart have damage too.

Prayers for nothing but good news for our Fighter πŸ™

Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family πŸ’œ

~Spina Bifida Fighters and Survivor ~

Support to help with Ceci’s Medical costs that aren’t covered by insurance, and expenses related to mommas hospital stay-
https://venmo.com/Alexis-Leihsing

Verification code- 5931

Send Cecilia Padilla an Email of love and support @

https://www.healthcare.uiowa.edu/programs/volunteerservices/emailpatient.asp?_ga=2.178586211.630172639.1601662721-2007807455.1601418123

TeamCeciStrong

FaithOverFear

Happy Monday

Good morning dearest friends.

πŸ˜πŸ˜ŠπŸ™‚

Over the moon excited! We have 2 Negative blood cultures for Ceci.

Getting closer to getting our sweet girl home and our family back together ❀

Ceci’s heading back into surgery here shortly. They need to place a PICC line to continue giving her IV antibiotics for at least the next 2 weeks.

Please say a prayer that the team is able to place one without any issues and that Ceci girl continues to heal, feel better and that her other lab work from today comes back good.

Thank you for having our family’s back and for being a part of #TeamCeciStrong

Be back soon.

Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family πŸ’œ

~Spina Bifida Fighters and Survivor ~

Support to help with Ceci’s Medical costs that aren’t covered by insurance, and expenses related to mommas hospital stay-
https://venmo.com/Alexis-Leihsing
Verification code- 5931

Send Cecilia Padilla an Email of love and support @

https://www.healthcare.uiowa.edu/programs/volunteerservices/emailpatient.asp?_ga=2.178586211.630172639.1601662721-2007807455.1601418123

FaithOverFear

Praise be to our Savior

So happy to be able to finally post this!!!!!

πŸ€Έβ€β™€οΈπŸ€Έβ€β™‚οΈπŸ€Έβ€β™€οΈπŸ€Έβ€β™‚οΈ

WE HAVE A NEGATIVE BLOOD CULTURE!!!

The antibiotics are working!

This is huge news for our girl. It tells us that the infection isn’t fused to anymore of her body’s hardware or tubings and what we’re doing is the right thing.

She still has a road ahead of healing and recovery but this is tremendous and positive news.

Thank you Lord Jesus and thank you to each and everyone of you for continuing to ask our almighty to watch over our girl while she fights strong πŸ’ͺ

She’s taking it easy and resting today. They had to do the 4th Covid test on her this week- today, because she’s going back into surgery early tomorrow morning for her PIC line placement.

So they numbed her poor nose with lidocaine spray and have her some Ativan to help with her anxiety and pain.

We found out that the Zosyn would not affect this issue we’re seeing with her liver enzyme levels rising out of range so tomorrow they will re- evaluate to see if more testing needs to some on our sweet girl.

Prayers for nothing but continued improvements and that our family is all together again soon.

Thank you to everyone sending sissy cards, emails and helping our family with expenses while she’s battling this latest demon.

The help and support means so much to us we can’t express our gratitude enough. Thank you dearest family.

Well I told sissy we would do some more planning for her sweet 16 this May – after I get some things done today. So our heads and hearts will be filled with pictures of dresses, decorations and great times for the rest of the day.

I’m so behind on this so what better thing to do today πŸ™‚

All I have figured out is the venue and Ceci picked her theme πŸŽ­πŸ‘—so as you can image I’m scrambling to find a DJ, Decorator, photographer, cake baker and all the other important people to make this the best party for sis. She needs soon happiness πŸ’—

Be back soon.


Lots of love and hugs, 
Alexis,  Cecilia Marie and Our Special Family ο’œ

~Spina Bifida Fighters and Survivor ~

Support to help with Ceci’s Medical costs that aren’t covered by insurance,  and expenses related to mommas hospital stay-

https://venmo.com/Alexis-Leihsing
Verification code- 5931

Send Cecilia Padilla an Email of love and support @

https://www.healthcare.uiowa.edu/programs/volunteerservices/emailpatient.asp?_ga=2.178586211.630172639.1601662721-2007807455.1601418123

Chess Tournament

Good morning guys, momma here. Ceci did well during the night πŸ™‚ she had some pvc’s but nothing too concerning. So at this point they do not think we need to get Cardiology involved. That’s news we needed!

She slept so long after the anesthesia from surgery that we stayed up late last night enjoying some time together.

After being NPO all day she actually had an appetite so her daddy went to Papa John’s before he left and got her favorite- cheese pizza.

He also ran to Walmart and got sis Checkers (one of her favorite games) and chess pieces were included. So we taught ourselves how to play and ended up having a nice tournament. This kiddo caught on quickly and we played for a few hours.

We plan on having another tournament tonight along with an Uno challenge- her all time favorite game 😁 child life was kind enough to track down a deck of Uno cards for us.

Since we found the source of infection yesterday in surgery and was able to clear it from her chest, infectious disease has restarted the infection treatment clock.

So even though we’ve been here for nearly a week getting around the clock antibiotics, tomorrow will be day 1 of treating this blood stream infection. She’ll get at least 2 more weeks of iv antibiotics.

We need 2 negative blood cultures in order to say that the treatment is working. They brought in the critical care team today and an ultrasound machine to drawn more blood cultures and labs from her arm. Our girls veins are just so shot they needed the help locating a viable vein to stick. So happy to say only 1 needle point thanks to the wonderful machine.

Knocking on wood right now- we’re very happy to say her deep peripheral line held through the night πŸ™‚ thank you lord! Only another 2 nights until her PIC line is placed on Monday.

Ceci has an amazing nurse an be tech working today so I’m driving home shortly to grab a few things and see our boys. Then coming back up.

Please continue to pray for a quiet weekend.

Lots of love, hugs and appreciation to you all,

Alexis, Cecilia Marie and Our Special Family πŸ’œ

~Spina Bifida Fighters and Survivor ~

Support to help with Ceci’s Medical costs that aren’t covered by insurance,  and expenses related to mommas hospital stay-

https://venmo.com/Alexis-Leihsing
Verification code- 5931

Send Cecilia Padilla an Email of love and support @

https://www.healthcare.uiowa.edu/programs/volunteerservices/emailpatient.asp?_ga=2.178586211.630172639.1601662721-2007807455.1601418123

Out of Surgery

Evening everyone, momma here. Sorry I’m just updating now.

Surgery went a little longer than we anticipated but our girl is doing okay this evening 😊 spirit wise she’s smiling and awake.

Her dad surprised us with a hospital visit while she was in surgery and it helped calm her and make her smile big time when she woke up.

Of course it was a big pick me up for me as well ☺ really needed that πŸ’œ

Surgery went longer due to the surgeons running into something we didn’t expect to find.

They opened Ceci’s chest to begin the port removal and was greeted by a massive pocket of infection. A cavity formed behind and around sis’s port and was highly infected.

They had to remove the port and perform a clean out to remove all the pus and blood.

We did not expect to find something like this but it explains how in the world sissy got sepsis and this awful blood infection.

It caused damage to her chest skin so the surgeon said they had to cut out a part of the area and make a new scar line.

With us finding this massive infection in her chest there’s so many bad things that can happen or have happened but we’re not even going to talk about them.

We’re trying to stay as positive as possible! God is on our side πŸ™Œ

Now that the port is out we’re hoping the iv antibiotics will begin helping and cure this blood stream infection that is causing so many problems.

At this point the anesthesia team was able to place a deep peripheral line in her fore arm to allow them to continue giving Ceci fluids and medications. But we know it won’t last πŸ˜” and the team knows too. The experts said they had a very hard time getting access.

So Monday they have scheduled for Ceci to head back into the operating room to have a PIC line placed. They did not want to do it today due to severity of the infection.

Please pray for a good weekend for sis.

Heading to Surgery

Our girl is heading to surgery.

Many prayers please.

Ceci is having some heart PVC’s on top of all this mess.

Will update again when I get a chance πŸ’Œ

Lots of love and hugs,
Alexis, Cecilia Marie and Our Special Family πŸ’œ

~Spina Bifida Fighters and Survivor ~

Support to help with Ceci’s Medical costs that aren’t covered by insurance, and expenses related to mommas hospital stay-

https://venmo.com/Alexis-Leihsing
Verification code- 5931

Send Cecilia Padilla an Email of love and support @

https://www.healthcare.uiowa.edu/programs/volunteerservices/emailpatient.asp?_ga=2.178586211.630172639.1601662721-2007807455.1601418123